SOC Sunday: What a week

I’m back for another installment of Stream of Consciousness Sunday hosted by Fadra of all.things.fadra.I’m not going to be answering the prompt this week but here it is if you’d like to write about it and link up or go visit Fadra to see what she and others have written.

Today’s (Optional) Writing Prompt: Have you reached the prime of your life? What do you want to be your legacy?

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What a week…

On Monday I had an appointment with my rheumatologist. He believes that my RA and fibromyalgia are both flaring up due to increased stress. I definitely have had an increase in stress the past 4 months or so. There has been a lot of additional stress since before Thanksgiving. My doctor decided to discontinue one of my medications and to increase the dose of another one. He also told me that I had to reduce my stress. It would have been helpful if he would offer some tangible suggestions for how I could do that.

I went on an amazing field trip with my son’s class to Año Nuevo State Park to see the elephant seals. We had a great time, the views were breathtaking, the elephant seals were majestic. And of course, I overdid it.

My legs have been bothering me a lot lately – I’ve been having a lot of muscle spasms e.g. tightness in my calves, hamstrings and quads. My hips have been bothering me, particularly my right hip. I often wake up with pain on the outside of the hip joint and I feel very sore right at the hip joint. Thursday I saw my primary care provider and she said that the soreness at the hip joint is not in itself a joint issue but a muscular/soft tissue problem. I will start physical therapy on the 20th. She also recommended doing a stretching routine in the morning and at night as well as looking for beginning/gentle yoga classes to help my muscles loosen up and not lose conditioning.

The appointment with the podiatrist on Friday went as I expected. I’ve been feeling the plantar fasciitis acting up in both feet again. I know the symptoms and the sensation that I feel when it’s acting up. It started to feel the way it did in October 2010 when I was told that I was tearing the plantar fascia in the arch of the foot. Just like in 2010, I am back to wearing a boot cast. For the next 4-6 weeks I will be sporting a walking boot cast on my right foot this time. Luckily, I don’t have to wear it while I sleep and I will, of course, take it off for driving. I think I want to decorate it, the plain black is so boring.

This week has left me feeling a bit deflated. One step forward, three steps back. I know that it could be worse and trust me I’m deeply grateful that it’s not any worse than it is. I was reading a post by RA Guy yesterday and so much resonated with me. He wrote about the importance of being confident in the decisions we make, his focus was on his decisions about his treatment. Two points that he wrote about that really hit home for me were “Connecting with my non-RA self” and “Failed Hope”.

I was talking to my husband about this and how the appointments this week really affected me. After a week of doctor’s appointments and the setbacks that have been confirmed for me, I feel like anything I’m doing right or trying to do is overshadowed by the RA. I am not my conditions, I happen to have these conditions. It can be easy to lose hope about how my body is responding to life, my attempts at taking care of myself and the treatments I am using to manage it all.

Apparently this is further proof that I haven’t learned my lesson. This is obviously an opportunity for me to sit back, reassess my boundaries and stick to them. I can’t expect for things to continue as they have been and expect different results. Isn’t that the true definition of insanity? Do things the way you always have and expect different results.

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This was my 5 minute Stream of Consciousness Sunday post. It’s a five minute brain dump. This week I wrote until it felt like this thought was complete. Link up at all.things.fadra

#SOCsunday

Reset and Refocus

Sometimes when the depression takes over and when my body goes into rebellion I have to take a moment to step back hit the reset button and refocus. This last episode with depression was difficult, I was much more vocal about it and I tried all the tools and techniques that I know have helped me before with little relief.

I’m happy to say that the depression is lifting. It feels as if it ran its course and had nowhere to go but away from me. Maybe talking about it more, sitting in the discomfort and the darkness, feeling it more fully this time are all making this improvement feel so much better. I can’t say that I did anything specific for it to lift, for it to go away.

I’ve taken some time to sit back, hit the reset button, refocus my energies.

I’m doing my best to stay on course with taking care of my body – this includes eating a gluten-free diet as much as possible, drinking lots of water, adding some movement in as I can, and taking my medications as directed. I keep going to acupuncture every two weeks because I know the benefits of it are essential to my well-being. I try to keep my brain stimulated by reading and keeping it engaged. Ok, I know reality tv is not necessarily the best way to keep my brain stimulated but it’s a small indulgence.

I’ve been trying to keep myself talking about what’s going on instead of stuffing things and putting them away to fester to overwhelming levels. This is supposed to help my emotional well-being. Talking to and staying connected with friends helps too.

My friend, Kim sent me a wonderful Random Act of Kindness that we like to call a Random Act of Monster. I received a beautiful Petunia the Patio Monster (Ravelry link) from Rebecca Danger’s The Big Book of Knitted Monsters. Petunia was a very welcome addition to my home and has also been helpful in fighting my recent monsters. Isn’t she adorable?

The love and support from friends and family has been great. Now that the depression is getting better, I’ve got to focus on my body getting better.

 

 

Happy December!

I get to start it off with a new pack of antibiotics!!! So I wrote a song about it, wanna hear it, here it goes…

 

On the first day of December my body gave to me…
A cough requiring antibiotics so I don’t end up with bronchitis or pneumonia….
Lalalalala, lala, la, la!!!!!

 

Due to the immune suppressant medications that I’m on for rheumatoid arthritis I catch colds, etc very easily. Often my colds become bronchitis and a couple of times I’ve had pneumonia, so my doctor and I have a system to prevent colds from becoming too serious.

Image: digitalart / FreeDigitalPhotos.net

It’s December 1st and I also want to acknowledge that today is World AIDS Day. Let’s not forget that AIDS is still a serious issue around the world, including the United States. Prevention and testing are the keys to limiting the impact that this horrible disease can have on the world. I used to work at an HIV clinic and I’d like to honor all the patients that received treatment there. And also to friends and family who have lost their battle with AIDS.

This is not a dress rehearsal

I’m going to start by saying I absolutely LOVE my acupuncturist, Jennifer. We have a history together, I’ve seen her for about 6 years now, maybe 7 – I can’t really remember. There are times when I don’t see her regularly for various reasons but I know she’s just a phone call away. I can call and schedule an appointment “for a tune-up” and I can usually get in to see her within a week, sometimes even the same day.

One of the things I love about Jennifer is that she will tell it like it is. And so on Monday, October 17th she told me like it is… again. The quick backstory: From Friday 10/14 8 am to Sunday 10/16 10:30 pm, I was at my younger son’s school for over 40 hours working at the food booth of the Fall Festival. Long story short, I overdid it – really overdid it. I needed a total engine overhaul.

So it was time for me to hear it again… I guess I’m stubborn and I didn’t get it the first, ummm I don’t know I’ve lost count of how many times. And this time it started with “This is not a dress rehearsal” and as soon as she said that I knew what was coming. In a nutshell the scolding went a little something like this:

“This is not a dress rehearsal, you can’t continue to do this to yourself. If something doesn’t change you’ll end up in a wheelchair and then you won’t be able to be there for anyone, especially your kids. I know that you want to participate in your kids’ activities and you’ve always been an overachiever. The only way you’ll be able to continue to do this is if you go into organize and delegate mode. I’ll do my part to help you if you do your part”

I’m sure there are some details I’m missing but that’s the basic message I heard. I’ve also got a list of instructions to follow. For now, I’m doing my best to follow a no wheat, no added sugar, no caffeine, no nightshade diet and I’m taking a supplement she recommended.

So far so good, I’ve stuck to no caffeine and I’ve done fairly well with no added sugar. No wheat has been a bit harder because there is wheat in everything! I’m adjusting though and finding some non-wheat substitutes. I’ve found some brown rice pasta, I’m ordering burgers at restaurants that are wrapped in lettuce instead of in a bun. I’m finding that the wheat alternatives taste good and are satisfying too. It’s been harder to eliminate the nightshades – tomatoes, potatoes, eggplant, chili peppers. I’ve always loved tomatoes and potatoes and while I still sneak in the occasional french fry when we have burgers I’m definitely not having a whole order of fries all to myself.

This is not a dress rehearsal, this is my life. I’ve got to do everything I can to make it the best possible experience that I can. If there’s anything I can do to improve my quality of life I have to do it. There’s no reason not to. Yes, I understand changing my eating habits can be very difficult, taking toxic medications is a challenge especially when they cause nausea but these are a small price to pay when I consider what the alternative could be. And yes, I still love Jennifer even though she scolds me, I know she does it because she cares and she knows I NEED to hear it.